Lonna Whiting’s mother Beth Gregory has been living with dementia since 2013. She is 69 years old.

When hospice abandons patients

Lonna Whiting
5 min readFeb 8, 2022

--

It happens more often than you think (and it’s not their fault).

Two weeks ago, I received a phone call from my mom’s hospice nurse, Corey.

“The medical team is thinking about live discharging your mom off of hospice services,” he said. “She hasn’t had a significant decline in six months.”

He went on to describe all the ways my mother’s end-stage dementia hadn’t progressed enough in the past several months to justify end-of-life care anymore.

Because she was now chair-bound, she was no longer a fall risk.

Because she had optimal vitals, she was not clinically close enough to death.

Because she’d actually come off some medications for behavioral issues, they considered her improved.

Because she was nonverbal, she wasn’t acting out or swearing at staff anymore.

If you were to check off all the boxes Corey and the rest of my mom’s medical team had to for Medicare purposes, by all means you’d consider her improved.

What wasn’t accounted for in the report, however, is the very reality for which my mom exists day in and day out, hour after hour, which is a life of complete immobility…

--

--

Lonna Whiting
Lonna Whiting

Written by Lonna Whiting

Writer, foundress of nothing. Exploring loss, existence, and the female left-handed experience.